IC new treatments

As per the website ichelp.org

At this time there is no cure for interstitial cystitis (IC). There are, however, many available treatment options to help relieve the symptoms of bladder pain, urgency, and frequency.

For most people with IC, a combination of treatments is the best approach. Finding the optimal individual treatment protocol may also require a period of trial and error. IC treatments may include:

At this time there is no cure for interstitial cystitis (IC). There are, however, many available treatment options to help relieve the symptoms of bladder pain, urgency, and frequency.

For most people with IC, a combination of treatments is the best approach. Finding the optimal individual treatment protocol may also require a period of trial and error. IC treatments may include:

IC PAIN MEDICINES

OTC MEDICINES

  • ASPIRIN
  • ACETAMINOPHEN
  • NSAIDS
  • IBUPROFEN
  • KETOPROFEN
  • NAPROXEN SODIUM

NON-NARCOTIC PAIN MEDICINES

  • PHENAZOPYRIDINE PLUS
  • PYRIDIUM
  • URELLE ORAL
  • URIBEL
  • UTIRA

TOPICAL MEDICINES

  • LIDOCAINE PATCH
  • VAGINAL AND RECTAL DIAZEPAM
  • TOPICAL AMITRIPTYLINE

NARCOTIC PAIN MEDICINES

  • CODEINE
  • HYDROCODONE
  • OXYCODONE
  • OXYMORPHONE
  • MORPHINE
  • HYDROMORPHONE
  • METHADONE
  • OXYCODONE
  • OXYMORPHONE
  • TAPENTADOL

IC DIET & SELF MANAGEMENT

Ways to help control symptoms: diet modification, bladder retraining, stress management, and healthy sleep habits.

Different approaches to the IC diet: allergy testing, gluten-free diets, IC Food List, antiyeast therapy, alkaline diets, nutrition supplements, and IC-friendly recipes.

PHYSICAL THERAPY

Learn about hands-on therapy and tools PTs use. Also get tips on how to find a knowledgeable PT and pay for therapy.

ANTIDEPRESSANTS

Learn about tricyclics (amitriptyline aka Elavil), SSRIs (Prozac, Paxil), SNRIs (Cymbalta), NRIs (Strattera), and bupropion (Wellbutrin).

ANTIHISTAMINES

Hydroxyzine is most widely used; however, some people with IC find relieve from Claritin, Benadryl, and Singulair.

PENTOSAN POLYSULFATE SODIUM

Pentosan polysulfate sodium (Elmiron) is the only oral medicine that is FDA approved for IC.

BLADDER INSTILLATIONS

Bladder instillations are mixtures of medicines put directly into the bladder. Read about DMSO, Sodium Hyaluronate, Heparin, and cocktails.

IMMUNOSUPPRESANTS

Read about Cyclosporine, Mycophenolate (CellCept), and Mycophenolate mofetil as potential IC treatments.

BRINGING NEW TREATMENTS
TO MARKET

EVER WONDER WHY IT SEEMS TO TAKE SUCH A LONG TIME FOR NEW IC MEDICATIONS TO BECOME AVAILABLE? HERE’S THE SCOOP!

SURGICAL PROCEDURES

Laser surgery is helpful for Hunner’s Ulcers. Other bladder surgeries—such as cystoscopy with hydrodistention—are considered a treatment of last resort.

NEUROMODULATION

Electrical nerve stimulators, also known as neuromodulators, have been helpful for many IC patients—products include UrgentPC, InterStim, Eon Mino, and IF3WAVE.

OTHER MEDICINES

IC treatment protocols may also include lots of other medicines such as alpha blockers (Flomax), amphetamines, anti-seizure meds (Neurontin), histamine blockers (Tagamet, Zantac, Pepcid), leukotriene inhibitors, prostaglandins (NSAIDS, ibuprofen), urinary antacids (potassium or sodium citrate, tricitrates), and urinary tract antispasmodics (Detrol, Toviaz, VESIcare).

OVER-THE-COUNTER MEDICINES

Medicines that do not require a prescription might include aspirin, acetaminophen, NSAIDs, ibuprofen, ketoprofen and naproxen sodium.

– See more at: http://www.ichelp.org/diagnosis-treatment/treatments/#sthash.bpbQnxzJ.dpuf

IC PAIN MEDICINES

OTC MEDICINES

  • ASPIRIN
  • ACETAMINOPHEN
  • NSAIDS
  • IBUPROFEN
  • KETOPROFEN
  • NAPROXEN SODIUM

NON-NARCOTIC PAIN MEDICINES

  • PHENAZOPYRIDINE PLUS
  • PYRIDIUM
  • URELLE ORAL
  • URIBEL
  • UTIRA

TOPICAL MEDICINES

  • LIDOCAINE PATCH
  • VAGINAL AND RECTAL DIAZEPAM
  • TOPICAL AMITRIPTYLINE

NARCOTIC PAIN MEDICINES

  • CODEINE
  • HYDROCODONE
  • OXYCODONE
  • OXYMORPHONE
  • MORPHINE
  • HYDROMORPHONE
  • METHADONE
  • OXYCODONE
  • OXYMORPHONE
  • TAPENTADOL

IC DIET & SELF MANAGEMENT

Ways to help control symptoms: diet modification, bladder retraining, stress management, and healthy sleep habits.

Different approaches to the IC diet: allergy testing, gluten-free diets, IC Food List, antiyeast therapy, alkaline diets, nutrition supplements, and IC-friendly recipes.

PHYSICAL THERAPY

Learn about hands-on therapy and tools PTs use. Also get tips on how to find a knowledgeable PT and pay for therapy.

ANTIDEPRESSANTS

Learn about tricyclics (amitriptyline aka Elavil), SSRIs (Prozac, Paxil), SNRIs (Cymbalta), NRIs (Strattera), and bupropion (Wellbutrin).

ANTIHISTAMINES

Hydroxyzine is most widely used; however, some people with IC find relieve from Claritin, Benadryl, and Singulair.

PENTOSAN POLYSULFATE SODIUM

Pentosan polysulfate sodium (Elmiron) is the only oral medicine that is FDA approved for IC.

BLADDER INSTILLATIONS

Bladder instillations are mixtures of medicines put directly into the bladder. Read about DMSO, Sodium Hyaluronate, Heparin, and cocktails.

IMMUNOSUPPRESANTS

Read about Cyclosporine, Mycophenolate (CellCept), and Mycophenolate mofetil as potential IC treatments.

BRINGING NEW TREATMENTS
TO MARKET

EVER WONDER WHY IT SEEMS TO TAKE SUCH A LONG TIME FOR NEW IC MEDICATIONS TO BECOME AVAILABLE? HERE’S THE SCOOP!

SURGICAL PROCEDURES

Laser surgery is helpful for Hunner’s Ulcers. Other bladder surgeries—such as cystoscopy with hydrodistention—are considered a treatment of last resort.

NEUROMODULATION

Electrical nerve stimulators, also known as neuromodulators, have been helpful for many IC patients—products include UrgentPC, InterStim, Eon Mino, and IF3WAVE.

OTHER MEDICINES

IC treatment protocols may also include lots of other medicines such as alpha blockers (Flomax), amphetamines, anti-seizure meds (Neurontin), histamine blockers (Tagamet, Zantac, Pepcid), leukotriene inhibitors, prostaglandins (NSAIDS, ibuprofen), urinary antacids (potassium or sodium citrate, tricitrates), and urinary tract antispasmodics (Detrol, Toviaz, VESIcare).

OVER-THE-COUNTER MEDICINES

Medicines that do not require a prescription might include aspirin, acetaminophen, NSAIDs, ibuprofen, ketoprofen and naproxen sodium.

– See more at: http://www.ichelp.org/diagnosis-treatment/treatments/#sthash.bpbQnxzJ.dpuf

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Relationships and IC

Quoting directly from the website http://www.ichelp.org

IC and Intimacy
Interstitial Cystitis (IC) can have a disruptive effect on sexuality and relationships. In a survey conducted by theInterstitial Cystitis Association (ICA), at least 90 percent of patients reported that their IC has kept them from sharing intimacy with their partner.

IC and associated conditions like pelvic pain and vulvodynia can affect all aspects of sex. From 50 to 85 percent of women with IC have vulvodynia. Many have pain with intercourse or orgasm, or sexual activity may prompt IC flareslater on. Pain can set up a cycle of low desire, tension in the relationship, depression, avoidance, and guilt. Although the effects of IC on men’s sexuality have not been studied, clinicians who treat men estimate that their rate of sexual difficulties is similar and note that they have essentially the same problems. Men with IC can have genital and perineal pain similar to vulvodynia, pain with intercourse, low desire, and relationship difficulties as well as erectile dysfunction and pain with ejaculation and after ejaculation.

The impact of IC on relationships and psychological well-being is great. In fact, impaired sexual function has been shown to be one of the strongest predictors of poorer quality of life in IC patients. Despite the magnitude of the problem for IC patients, it often is not addressed.

Sexuality and painful sex doesn’t get addressed for many reasons. Doctors often do not discuss sex with their patients. In addition, it can be difficult to talk to your partner about intimacy. But if you are proactive about seeking medical treatment, sex therapy, counseling, and good communication with your partner, you can restore satisfying, comfortable sexual intimacy to your life.

Explore Alternatives to Intercourse

If your IC or pelvic pain makes intercourse just too painful, there are reasonable alternatives. When penetration is too painful for women with IC, couples often use “outercourse” techniques. Often, that means joining either in a “spoon” position or with the partner’s genitals resting on top of the pubic area or between a woman’s thighs, breasts, or buttocks and rubbing bodies in a way to experience high levels of arousal and even orgasm (for one or both partners). Partners can also bring each other to orgasm, if that is comfortable, orally or manually or masturbate mutually. And sex isn’t all about orgasm. You and your partner may be able to maintain your sexual connection with sex talk, sharing fantasies, cuddling, reading erotica, watching sexy videos, kissing from head to toe, bathing together, or sensuous massage

Here’s an interesting question and answer session by Jill Osborne from ic network

http://www.ic-network.com/guestlectures/cjaynetranscriptfinalrev.pdf

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IC and time to diagnosis

In light of my recent correspondence with IC patients it seems that for a lot of them a  long time elapsed between their illness and actual diagnosis.A lot of cases seem borderline IC.Sometimes a doctor diagnoses that a person doesn’t have IC but a patient still seems to have ongoing cystitis symptoms.

Here are a few things that can be done about it

http://www.mayoclinic.org/diseases-conditions/interstitial-cystitis/basics/tests-diagnosis/con-20022439

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IC treatment options

Please note that I am  not a medical practitioner and have merely  utilized the information on Interstitial cystitis found online.I am also not affiliated with any author or to any clinic or hospital

This is a really useful article about finding out if you have interstitial cystitis and different treatment options.It is often very difficult to determine whether you have bacterial cystitis or interstitial cystitis.This article clarifies in great detail the difference between the two.

http://urology.stanford.edu/about/articles/cystitis.html

Interstitial cystitis and similar conditions

Here is an article  from  URO Today which talks about Urinary tract Infections and Endometriosis  which may have symptoms that are similar to IC

UroToday.com – Symptoms characteristic of IC have been reported to occur in more than 2% of women. Far more common conditions can result in confounding symptomatology. Dr. Jeffrey Dell and colleagues from Knoxville, Tennessee and New Brunswick, NJ remind us of some of these more common disorders.

Urinary tract infections (UTI) are very common among women. Over half of all women will experience a urinary tract infection during their lifetimes. Many BPS/IC patients are mistakenly diagnosed with recurrent UTI, and the importance of documenting the presence of true infection in patients with dysuria and frequency is self-evident if one does not want to miscategorize and mistreat this group of patients.

Endometriosis, the presence of endometrial glands and stroma outside the uterus, is a common gynecological condition occurring in up to 50% of premenopausal women and in 71-87% of women with chronic pelvic pain. Patients with endometriosis may present with chronic pelvic pain in addition to urinary frequency, dysuria, and hematuria, particularly if the bladder wall is involved. Dyspareunia is another common symptom. The pain of endometriosis is typically cyclical. The diagnosis is based on history, physical examination, laparoscopic examination, and confirmation by histology.

Interstitial cystitis potential treatments- There are a number of mainstream as well as complementary  health care treatments for IC.There are also therapies for IC from Ayurveda and  Chinese medicine

Mainstream  treatments

The most comprehensive list of mainstream IC treatments can be found on the IC Network website:

  1. http://www.ic-network.com/conditions/interstitial-cystitis/exploring-treatments
  2. This is an interesting article on Intertitial Cystitis and Stem Cell therapy http://www.icpbssupport.com/ic–stem-cell-treatment-interview.html

Complementary therapies

  1. Here is a link to the NHS website which lists different complementary therapies http://www.nhs.uk/Livewell/complementary-alternative-medicine/Pages/complementary-alternative-medicines.aspx
  2. The Hale clinic in  London also offers various complementary therapies and the widest range of holistic treatments in europe   http://www.haleclinic.com/
  3. Here is a link to a book on sound healing with nam myo ho renge kyo a  mantra from the buddhist tradition but which can be utilized from people from all religons  and atheists which mentions how the author cured himself of cancer with sound healing  http://www.amazon.co.uk/Modern-Buddhist-Healing-Spiritual-Transcending/dp/0892540621/ref=sr_1_1?ie=UTF8&qid=1408021441&sr=8-1&keywords=modern+buddhist+healing
  4. Here is a link to  a book on sound healing with mantras which mentions specific mantras  such as the Mahamritunjaya mantra  and  Rama Healing manta from the Hindu tradition for physical health.Again though the roots of this practice are Hindu these mantras can be utilized by people from all religions and atheists as well as agnostic people. Sound healing really gave me a breakthrough in IC after 17 yrs along with mainstream medicines like prelief and lyrica (prelief is awesome).I’d really urge patients to try sound healing for 30 min daily in the privacy of their own home for atleast 40 days.It’s completely free and you can do it independently at home without relying on anyone else.At best you will feel a whole lot better.At worst you will have lost 20 hours of your time without any effect.Sceptics will argue that even if it works it’s just the placebo effect.It doesn’t matter if it’s just the placebo effect.What matters is that you feel a whole lot better.  Here is a link to how these 2 mantras are said Mahamritunjaya mantra https://www.youtube.com/watch?v=ClxgIS-_X_g
  5. Rama Healing mantra https://www.youtube.com/watch?v=H-ugDfGTHhE
  6. Here is a book which explains sound healing http://www.amazon.co.uk/Healing-Mantras-Thomas-Ashley-Farrand/dp/0345431707/ref=sr_1_1?ie=UTF8&qid=1408021552&sr=8-1&keywords=healing+mantras

Chinese medicine

Please have a look at the institute of chinese medicine website

http://www.instituteofchinesemedicine.org/welcome.htm

 

Ayurvedic medicine

There are many clinics which offer Ayurvedic treatments for IC for eg   http://www.ayuwave.com/contacts.php

 

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Ic medicines prices and drug assistance programmes

IC medicines are often very expensive and patients struggle to afford them.Sometimes cheaper generic drugs are available. Here is an interesting article about IC medicines and generic options.

http://www.ic-network.com/patient-resources/drug-assistance-programs/

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IC menu options-part 2 with recipe links

Please note- Although there is  lemon or lime and black pepper mentioned as an ingredient in some recipes please leave it out or add it in very small quantities

Soups

Carrot and coriander soup  http://www.bbcgoodfood.com/recipes/7003/carrot-and-coriander-soup

Pea and mint soup  http://www.bbcgoodfood.com/recipes/1907/pea-and-mint-soup-

Mains- Italian

Herby pasta dumplings   http://www.jamieoliver.com/recipes/pasta-recipes/basil-gnudi/#B5tf7a5tvXCS1Ir2.97

Courgette carbonara  http://www.jamieoliver.com/recipes/pasta-recipes/beautiful-courgette-carbonara/#D15gEo3jRPRTZgwY.97

Sandwiches and wraps

Salmon and cream cheese sandwich  http://www.bbc.co.uk/food/recipes/tea_sandwiches_59195

Mushroom and cheese sandwich http://www.bbc.co.uk/food/recipes/mushroom_and_taleggio_46144

Hummus salad wrap ( leave out the red peppers in the recipe) http://www.foodnetwork.com/recipes/ellie-krieger/hummus-and-grilled-vegetable-wrap-recipe.html

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IC menu options-part 1

Italian

Pasta Carbonara

Pasta with green pesto sauce ( you can make a nice basil pesto at home leaving out the chilli)

Pasta with 4 cheese sauce

Mushroom risotto ( leave out the wine from the risotto)

Mushroom pesto pasta

Chesnut pesto pasta

Pasta with saffron sauce

Pasta with  pan fried spinach balls

Indian ( all Indian dishes can be made IC friendly and cooked without chilli)

However try and make the masala from scratch as store bought  Indianmasala will have chilli in it.Also use very little tomato just for taste even if the recipe says that you have to use a lot.

YellowDal

Palak Paneer

Sag Aloo

Black Dal

Channa Masala

Methi chicken

Chicken Korma

Lebanese/Middle eastern

Falafel ( without chilli)

Any kebab ( without chilli)

Vine Leaves

Chinese

Sweet corn chicken soup

Dim sums

Fried Rice

Spring Rolls

Sweet and sour chicken ( have prelief as contains vinegar)

Salad dressings and sauces

Tzatziki

Hummus

Taramasalata

Guacamole ( without chilli homemade)

Basil pesto sauce ( homemade without chilli)

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