Food options and travel tips for IC patients on Spanish Island Holidays

You’re off on a holiday and you want to relax and have some wine or a beer or at the very least a cup of coffee before you set off sightseeing and  suddenly you realize that you probably shouldn’t.Dont panic yet.There are probably many things you can do:)

Have some wine or beer or sangria but only a couple of sips  not  a whole bottle and follow it up with a couple of prelief tablets to help you cope with the acidity.

You want to dive into some paella but fear that the tomato may give you sleepless nights.Opt for some croquettes or spanish omelettes instead both are relatively mild and bladder friendly

You’re  really tempted by the orange juice but it’s not that bladder friendly.Have some watermelon or apple juice instead though in small quantities and only as a treat as they are pretty acidic.

Try and get on one of those mini submarines and glass boat rides in the ocean.There’s nothing like watching the fish go by to make you feel all relaxed and happy again!

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Interstitial cystitis treatment Jill Osborne inspiring story

http://www.bettermedicine.com/interstitial-cystitis/my-interstitial-cystitis-story-i-didnt-give-up;jsessionid=7D7DBFF42B3B36BE876D70304A5E3DC6?redirect=beme

This is the inspiring story of Jill Osborne IC network founder.Jill is my idol and I remember the days back in 1996 when my IC had just started  I used to keep referring to her site  www.ic-network.com for information on treatments. I still continue to do so.

Jill is amazing. She started her own IC organization  which spreads  IC awareness and is the one stop solution for all ic non prescription medication.

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elmiron , lyrica (pregbalin) and gabapentin

Here is an indepth write up about Elmiron

http://www.ichelp.org/Elmiron

Elmiron definitely worked for me.I saw that I could get away with eating outside food occasionally.

Pregbalin- this is great at blocking nerve pain and it worked very well for me.

This is a great and comprehensive writeup on oral Interstitial Cystitis medications.

http://www.arhp.org/Publications-and-Resources/Clinical-Proceedings/Screening-Treatment-and-Management-of-ICPBS/Management

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Interstitial cystitis and student years

I had IC from age 13 (I’am 33 now) and it really affected my studies and career.The pain meds made me extremely sleepy and drowsy and coupled with the pain I found it difficult to get a good nights rest.Now it’s possible to bear this if it goes on for a week but to have it for years and years and years really drains a person out.

I remember struggling to take in material for my lectures and struggling to remember things since the meds made me feel sleepy and spaced out.

Looking back what advice can I give to students?

First of all I’d advise students to study smart and focus on areas most likely to crop up in an exam.There’s always extra recommended reading but if you’re struggling to take in any material at all it’s best to know fewer important things and know them well.

I’d also recommend that students ask their fellow students and friends for notes.Some colleges even have note takers if you’re too drowsy and in pain to take notes.I for one didn’t know about this so missed out on the opportunity to have a note taker.However I managed to get by because my friends gave me their notes

I’d also advice following a super strict bladder friendly diet as this will help cut down the pain and help you focus on your studies and career.Don’t have coffee during exams to keep you up as this will increase the pain.

Some colleges give you grades after considering extenuating circumstances and IC qualifies as an extenuating circumstance. Tutors will take your IC into consideration and mark your papers more leniently.I took advantage of this in the last year of my degree but didn’t know about this in my first 2 university years.

Lastly develop a thick skin- while some friends and family are awesome and may support a lot you others may have a condescending attitude and say things like’ why can’t you be positive and go abroad for a cure and the latest treatment’ or ‘It’s just a minor acidity and bladder problem’They may not choose or bother to find out that there is no cure but feel entitled to dish out free condescending advice without knowing much about the disease.Other friends may be awesome and support you extremely well. I had some awesome friends who went out of their way to help me while others had a judging ,condescending attitude ( luckily the mean friends were in the minority).It’s a mixed bag.Don’t let the bad apples affect you. Remember that most of them get all grumpy with having just a day’s fever and so they shouldn’t really comment on someone who has been suffering for years:)

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IC and bladder instillations ,TENS,elmirion- patient experiences

I haven’t had bladder instillations for my IC so far.

Here is an NHS writeup about bladder instillations.

http://www.uhb.nhs.uk/pdf/PiBladderInstillation.pdf

Recently I heard a horror story about a bladder instillation procedure not being performed correctly as a result of which the patient was left in severe pain for several hours and really traumatized.

I have had the TENS procedure around 10 years back but it didn’t really work for me and infact made my symptoms worse.

Elmiron worked for me and decreased the pain and frequency.The drawback with Elmiron is that it is extremely expensive.

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daily mail does stories of actresses with IC

According to a daily mail article Dynasty star Pamela Sue Martin had to quit acting in Dynasty at the peak of her career because of the tremendous pain associated with IC. She now lives life more holistically and has explored numerous naturopathic treatments.Was quite impressed to see that Daily Mail can do serious journalism and can publish health related articles albeit about a public figure.

http://www.dailymail.co.uk/health/article-471915/Dynasty-star-Like-millions-women-I-secretly-fighting-baldness.html

Young and Restless star Melody Scott Thomas is now much better after a 5 year struggle with IC and has tried to create awareness about this condition.

http://be-healthy-today.blogspot.co.uk/2008/03/melody-thomas-scott-reveals-her-six.html

http://www.drdonnica.com/celebrities/00009209.htm

It’s quite remarkable and admirable how these actresses managed to act well and look their best in spite of struggling with IC.

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Interstitial cystitis ,botox and sound healing

Those of who are considering Botox for the pelvic floor muscles; let me share a bit about my experience with Botox.

Botox merely controlled my spams; it does not cure the underlying inflammation in the bladder.As a result of which I had to do botox 4-5 times in 4-5 years as the effects disappeared in around 1 year. Botox did however reduce my  spasms for 6 months to 1 yr each time I  did the therapy.

The aim should be to cure the wound in the bladder. Please try omega 3 which reduces the inflammation. Having a non acidic and relatively bland or mild diet is also very helpful.These 2 things are absolutely key.

Also please have an open mind about sound healing which is free and finally brought my IC under control after 17 years.I had tried every conceivable mainstream method till then.

Please try this mantra below.It’s from the book Healing mantras by Thomas Ashley  Farrand . I know many people are skeptical about sound healing.  Sound healing had such remarkable effects in my case. Chanting a sound healing mantra is free and can be done in the privacy of your own home I urge you to try it 5 mins daily for 20 days at least.At worst it won’t work and you will have lost 2 hours in 20 days, At best you will feel much better.You have to keep chanting it for as many days as it takes to get cured and I am aiming for a complete cure! Skeptics would say it’s the placebo effect and not the power of the mantra.It doesn’t matter if it’s the placebo effect; all that matters is that you feel better.

Here  is the mantra:

Om Apadamapa
Hartaram Dataram Sarva Sampadam
Loka Bhi Ramam Sri Ramam
Bhuyo Bhuyo Namamyaham
Here is the youtube link to the mantra
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